Our Blessing Named Jesse

Jesse Quintin was born September 26, 2007, the much-loved fifth son of Kristan and Chad. He was diagnosed shortly after birth with AV Canal Heart Defect and Down Syndrome. Thursday, January 10th, Jesse had surgery to repair his heart defect. Friday morning he suddenly went into cardiac arrest. After 45 min. of CPR he was attached to life support. By God's healing hand his heart started to beat again and he came off life support on January 13. We created this blog to keep everyone updated.





Sunday, December 28, 2008

Our New Family Blog

As we were preparing our Christmas card this year, we decided it was time to discontinue Jesse's blog and start a new blog where we can post things about our whole family.
So please check out our new "Lange Gang" family blog at http://www.thelangegang.blogspot.com/

We will keep Jesse's blog open in case we ever need it in the future, but for now on please see our family blog.

We hope to keep everyone updated this coming year on all the exciting things happening in our family!
Kristan

Tuesday, December 16, 2008

Getting Bigger

I forgot to put in Jesse's weight from his last appointment. He is now 20 pounds 12 ounces - continuing to grow steadily.

Saturday, December 13, 2008

December 11th Appointments

Thursday Jesse had 2 apointments at Children's Hospital. The first was with his physical therapist. We were very excited with how much progress he has made since his last appointment. He now gets to sitting position in an instant, army crawls everywhere, pulls to stand on everything, and is starting to "cruise" (has taken 1-2 steps while holding on to the coffee table.) Our next things to work on are climbing stairs, crawling on hands and knees, and assisted walking.

In the afternoon we saw his cardiologist. He was very unhappy and screaming after the EKG, and then went for an echo. I could tell from watching the screen that the pulmonary hypertension numbers were high. Thankfully, he calmed down after about a 1/2 hour break, and the numbers came way down. The doctor thought everything looked great and we probably won't have to go back for 3 months. And then we may be looking at starting to wean off oxygen. YEAH!!!

Thanks for your continued prayers for Jesse's health throughout the winter.

Kristan

Wednesday, December 3, 2008

New Teeth

I discovered 2 top molars in Jesse's mouth in the last couple days - so he now has his 4 bottom front teeth, 3 top front teeth, and 2 top molars - for a total of 9 teeth! Wow , he is getting a mouthfull, which is great, but he does bite ocassionally! I guess I was surprised by all these teeth, because children wtih Down Syndrome are often delayed in their teeth too. I think the little 2 year old at his party only had 2 teeth. But Jesse seems to be right on time with his teeth, and is starting to eat more foods.

Jesse loves to play ball and has a pretty good throw. He both says "ba" and has signed "ball".

He is pulling up more frequently on various things, and getting pretty good at sitting/falling back down. But he frequently falls and usually has a bruise on his forehead.

Jesse still has a wonderful smile that we see all the time at home, but has gone through a couple months of really being scared of other people. He frequently starts crying and screaming if someone talks to him or looks at him. It was getting so I couldn't even leave him with Grandma because he would cry the whole time. But last Tuesday he had a great day with her while I did lots of errands and went to Bible study. Hopefully he will get a little more comfortable with others so I can leave him once in a while.

This Thanksgiving was special as I reflected on all we have to be thankful for in Jesse's life, a life that came so close to ending last January. I am so thankful we have had this time to watch him grow and be part of our family.

Kristan

Oh how great is thy goodness, which thou hast laid up for them that fear thee;
which thou hast wrought for them that trust in thee before the sons of men! (Psalm 31:19)