Jesse continues to do very well - getting stronger every day. He is getting closer to being able to sit up, and standing with assistance. He got his first tooth last week. He babbles quite a bit - ba, ba, ba and da, da, da.
It looks like the increase in medication might be helping. The last couple days his oxygen only falls to 83-85 (instead of 80) when he isn't on oxygen. We have more appointments scheduled in July. On July 14th he goes in for an echo of his heart at 9:00am and then will see Dr. Ivy, the pulmonary hypertension specialist at 10:00am. He will then advise us as to how soon we need to do the heart cath. Then at 11:30 we go for the pH Probe which is a 23 hour study with a very thin tube through his nose down into the esophagus to measure pH, to check for reflux. Then on July 16th he will have swallow study, about a 2 hour test and then spend the night again for a sleep study. The waiting is so hard. I am hoping we find some information that will help us to treat Jesse.
Please pray for little AnnaSophia and her family - you can check her blog for the latest update www.ourannasophia.blogspot.com . She is in Denver staying at the Ronald McDonald house awaiting a heart transplant.
Kristan
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Had a get together at church last night and the ladies asked how you were getting a long. I enjoyed sharing about Jesse and how he has grown and is doing "well". Your family is in the prayers and thoughts of so many. Thank you so much for the blog (although I like our real chats better) it is a great place to type a note and find out what is new. Love you guys♥
ReplyDeleteKristan, it was such a blessing to see you, Jesse and Sam. Thank you for the continued prayers. I was so encouraged after your visit. I pray that Jesse continues to do well, and that the Lord will give the doctors wisdom regarding Jesse's care. He is such a cutie!
ReplyDeleteBlessings,
Mary Berry