Well, we are done with the sleep study. They should call it a "no" sleep study. Jesse actually did quite well, but kept grabbing at his face all night trying to take things off - mostly the nasal cannula. He also took 2 bottles during the night - he normally sleeps all night. Then at 6:00am the study was over and they wake us up. I think I managed to get a few hours of sleep. Jesse woke up with a smile on his face. He is such a happy baby. We will have to wait a week or two for the results. I really don't know what to expect. All I know is that they start the study on room air, and only turn on oxygen if they go below 80 for 2 minutes. And the nurse had to turn on the oxygen I think within the first hour. She started it at 1/8 liter, but later I saw it was at 1/4 liter (his usual amount).
Now I am with Jesse waiting to see an eye doctor - mostly about the nystagmus. I think his plugged tear ducts have finally resolved, just within the last couple weeks.
The next big test is the heart cath - now scheduled for August 13th. It is not supposed to be overnight, but please pray that that goes smoothly as the anesthesia and ventilator scare me.
Kristan
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Chad and Kristan,
ReplyDeleteWe Continue to check for updates.
Thank you for the updates. We continue to pray for Jesse and the whole family. We pray for God's will to be done in Jesse's life and for strength and peace for all of you. Children are truly a blessing from God, which you already know. May the Lord Jesus Christ give you two wisdom for decisions to come and peace and joy for the time now! :)
May your faith hold strong and may your family continue to reach others for God's glory!
This songs comes to mind:
Trusting Jesus
Simply trusting every day,
Trusting thru a stormy way;
Even when my faith is small,
Trusting Jesus that is all.
***Chorus***
Trusting as the moments fly,
Trusting as the days go by;
Trusting Him whate'er befall;
Trusting Jesus that is all.
Brightly doth His Spirit shine
Into this poor heart of mine;
While He leads I cannot fall,
Trusting Jesus that is all.
*******
Singing if my way is clear,
Praying if the path be drear;
If in danger, for Him call,
Trusting Jesus that is all.
*******
Trusting Him while life shall last,
Trusting Him till earth be past;
Till within the jasper wall,
Trusting Jesus that is all.
*******
Words- Edgar Page Stites
Music- Ira D. Sankey
In Christ's Love,
The Dirks Family
Kim Lingold told my about your family (she is a friend of mine from junior high)and I linked to your blog through AnnaSophia's blog. I also have a "heart baby" we were in the CICU March 25-May 8th. I am glad to hear that Jesse is doing well. I will keep your family in my thoughts and prayers.
ReplyDeleteLisa Dietel (Aidenne's mom)
Dear Kristan,
ReplyDeleteIt was so good seeing you and Jesse. He is such a miracle and a big cutie. We hope to visit with you again soon. We pray for wisdom for the doctors and that you will receive clear answers to Jesse's tests soon.
Blessings,
Mary Berry