The doctors were not able to fix the pH machine, so we were discharged late Monday night and got to Grandpa and Grandma's home around 10:30pm. I hopefully will hear in the next few days whether we have to redo the test for the full 24 hours, or if the 7 hours will give them enough readings. The first hour after inserting the pH probe Jesse was VERY unhappy, but he did finally get used to it and then we had a fun day at the hospital. We got to visit with lots of nurses who were so excited to see how he had grown. On Monday Jesse weighed 17 lbs 13 oz, and was 28 inches long. We took a couple trips to the playroom where Jesse had so much fun with all the toys! He was rolling all around playing with toys while I kept trying to keep him from getting all tangled up in the wires.
I also had the opportunity to have a nice lunch with Mary, AnnaSophia's mother, and then even took Jesse back to see AnnaSophia and Steve. AnnaSophia looked good, but she was very fussy - either in pain, or just unhappy about her whole situation. But it was so wonderful to be able to see her and think of all that God has done for her, and for all of us. There are so many similarities to things that have happened to her and Jesse. I am so thankful that God brought our 2 families together.
Jesse goes back in to the hospital tomorrow for a 2 hour swallow study in the afternoon, and then will be spending the night for a sleep study. Please pray that the sleep study goes well and he is able to sleep. It seems like it will be difficult being hooked up to all sorts of probes.
Sam and I had a good day with Grandma Wanda, while Collin has been at "Chess Camp" (in Denver, all day Monday-Wednesday and he is loving it!) Chad and Matt are back taking care of the farm. I am looking forward to getting back Thursday after all these appointments.
Kristan
Our Blessing Named Jesse
Jesse Quintin was born September 26, 2007, the much-loved fifth son of Kristan and Chad. He was diagnosed shortly after birth with AV Canal Heart Defect and Down Syndrome. Thursday, January 10th, Jesse had surgery to repair his heart defect. Friday morning he suddenly went into cardiac arrest. After 45 min. of CPR he was attached to life support. By God's healing hand his heart started to beat again and he came off life support on January 13. We created this blog to keep everyone updated.
Tuesday, July 15, 2008
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