Thursday's Appointments

This morning Jesse and I drove to Children's Hospital for Jesse's first appointment with Patricia Winders, a Physical Therapist who recently came to Denver from Maryland to join the new "Linda Crnic Insitute for Down Syndrome". She is the author of the book: Gross Motor Skills in Children with Down Syndrome: A Guide for Parents and Professionals. She has been exclusively working with children with Down Syndrome for many years (I think since 1981). Her focus is on teaching the children how to do skills correctly (such as getting into sitting position, pulling-up, standing, etc.). This prevents future problems. I really enjoyed meeting with her and will be implementing her suggestions at home. Jesse continues to get occupational therapy in our home with Michelle Kaiser - usually every other week - which we really enjoy also. I think I will continue to come in to see Patricia Winders every month or two, and use the suggestions in her book. From the short session today, it looked to me like he will be learning how to get into a sitting position pretty quickly which is very exciting!

This afternoon we met with a neurologist. Jesse's EEG was normal, and after reviewing the video she felt Jesse's episodes are not seizures. During the appointment he actually had a few short "episodes" so she got to see first hand what they look like. We aren't really sure what they are, but seem to be just a silly baby thing. She will talk with Dr. Ivy tomorrow and hopefully he will think it is ok to go ahead with the heart cath next Tuesday.

We are spending the night here in Denver and Jesse will have his 1 year pictures taken in the morning, and then go to see a pulmonologist. Hopefully that appointment will be as positive as today's were.

Kristan