A little progress report on Jesse -
Jesse is now over 11 months old. He can sit for a fairly long period of time now if I put him in a sitting position. He still "belly crawls" all over. His favorite things to go for are the shelf with the DVDs, and at Grandma's he goes across the living room to take off the grate over the heating duct and play with the spring door stop. He hasn't said any words yet. He definitely likes to be with Mom. At church he has stayed in the nursery a few times and plays fine for a while, but once he gets upset no one can calm him down so they have to come get me. He has started clapping, imitating me. He enjoys eating most foods, but especially likes graham crackers and yogurt.
Jesse's oxygen levels seem to be getting somewhat better, but it is strange to me how they can change. A few examples: Last night I turned off the oxygen while he was still awake and he stayed at 95% for quite a while, and still stayed above 90%, but within a few minutes of being asleep he was below 90, and soon down to 85%. But he was definitely going down slowly. On oxygen he stayed at 96-97% all night, then after a bottle at 6:00am in the morning he was down to 91-92% for a couple hours before coming back up. I'm not sure why he goes so low while he sleeps. I don't think that is pulmonary hypertension, but just because he breathes so shallowly. So, his heart cath is still scheduled for October 7th, but... I am wondering if he is staying in the 90s while awake, maybe he is getting better and doesn't need the cath. The doctor still wants to do it, but I am hoping to take him in sometime in September so they can do another echo. The one done in the ER was while he was on 1 liter oxygen, so that is why it looked better. I would like to see how it looks when he isn't on oxygen. But we will see what the doctor says...
We are getting reading for Sam's 3rd birthday on September 10th, and Jesse's 1st birthday on the 26th. And we plan to start our school year this week. Matthew is in 6th grade and Collin in 2nd. So we will have a fun and busy month.
Kristan
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Dear Chad and Kristan,
ReplyDeleteIt does sound like Jesse is progressing and improving. We are praising the Lord and rejoicing with you! We just have to always remember it is God's timing, not ours!
It is amazing how fast our children grow right before our eyes. We are still thinking of them as our little babies and here they are already having birthdays and progressing up in grades! Tell Sam happy birthday. My dad's birthday is the same day and he will be 76!
May all of you stay strong in the Lord and continue to lean on Jesus Christ as our rock for every thing! Jesus is a rock in a weary land, a shelter in the time of storm! :)
Read
Psalm 34
In Christ's Love,
The Dirks Family