Well, we have been at Children's Hospital for one month now. It is hard to believe. Sometimes it feels like "forever" and sometimes I can't believe it has already been that long. Yesterday we had some issues with Jesse's PICC line. Since he had so little medication running through it, the line clogged. The nurses spent a few hours working on it and managed to get one port working (there are 2). So they were able to continue the Octreotide until today as planned. It was shut off a couple hours ago, but they still have fluid running through the line in case they need to start meds again. Jesse is doing great eating and his oxygen sats are good. He had a chest x-ray this morning and will have one tomorrow to see if any fluid starts accmulating. He had a great night last night - had his last bottle around 7:00pm, fell asleep around 9:00pm and didn't wake up until 5:00am! He is now drinking between 2-4 ounces each feeding with just a little spitting up.
Chad called and is on his way with the boys for a visit. I'm excited to see everyone again!
Love,
Kristan
For you, O LORD, have made me glad by your work;
at the works of your hands I sing for joy. (Psalm 92:4)
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Feb 10, 2008
ReplyDeleteGrateful that Jesse's report and looking that he and Kristan will be coming home in the near future!!!Today was AWANA clubber of the month--it is always good to see the clubbers hiding God's word in their hearts.
A family is a patchwork of personalities tied together with heartstrings. It will be nice to hear when the Lang family will be back together at the same address:):)
Love in Christ,
Chuck & Ruth
From Psalm 138 (NIV)
ReplyDelete"I will praise you, O Lord, with all my heart....
and I will praise your name for your love and your faithfulness...
When I called, you answered me;
you made me bold and stouthearted...
The Lord will fulfill His purpose for me; your love, O Lord, endures forever---do not abandon the work of your hands."
Your perseverance has blessed SO many. We rejoice that Jesse continues to improve. Praying you will all be home together SOON.
Sylvia G
We are praying for continued healing and no new fluid accumulation. Amee, thanks for posting from your heart in your comment on the blog. It blessed me. I'm glad for Kristan and you have drawn closer over the last month. What a blessing. You're right, God's ways certainly are higher than ours, and we may not really understand why He works the way He does, but we can trust Him. He is worthy of all praise.
ReplyDeleteI'm praying to see a posting that says "GOING HOME" in the next few days.
Lots of love,
Aunt Kim
We are praying that all continues to all go well. I agree that sometimes the last month seems like forever -- and then it seems to have flown by.... Hopefully we can count on our fingers the days till you and Jesse are back home.
ReplyDeleteLots of love,
Grandma Mari & Grandpa Emil