Collin spent last night here at the hospital and then all the boys were here for lunch today. We got to play a while in the playroom. Then the Bromptons came for a visit and took the boys home to Crook. Jesse and I walked downstairs to see them go. It was hard being left behind. I really hope we are able to go home next week.
Jesse will start on Portagen formula sometime tomorrow. Then if that goes well with no chest drainage, they will discontinue the Octreotide on Sunday. Then we will pray that the drainage doesn't resume and we would be able to go home sometime next week! If the drainage comes back I think we will be looking at surgical options (Dr. Mitchell advised a procedure called "pleurodesis".)
Thank you everyone for all of the cards, e-mails, and packages!
Love,
Kristan
Subscribe to:
Post Comments (Atom)
I'm still praying that Jesse's home to celebrate "heart day" - his first Valentine's Day. Wouldn't that be awesome?
ReplyDeleteI love you!
Kim
Here's a little thing I got in my email box today - I just had to send it to you guys.
ReplyDeleteA nurse on the pediatric ward, before listening to the little ones chests, would plug the stethoscope into their ears and let them listen to their own hearts. Their eyes would always light up with awe, but she never got a response equal to four-year old David's comment.
Gently she tucked the stethoscope into his ears and placed the disk over his heart. 'Listen', she said...........'What do you suppose that is?' He drew his eyebrows together in a puzzled line and looked up as if lost in the mystery of the strange tap - tap - tapping deep in his chest. Then his face broke out in a wondrous grin and he asked, 'Is that Jesus knocking?'
I pray many will hear Jesus knocking on their hearts, as we watch Him at work in Jesse's life.
Kristan, Chad, and Family,
ReplyDeleteWe are praying that things will go well with Jesse and you guys will get to go home. It is hard staying behind when family is going, but Jesus is still there with you and Jesse, always. We are happy to see the improvements that Jesse is making. The Lord is working His will into things and it will work out for the good.
We are thankful that you have family who is there to help and encourage all of you. That was wonderful of your sister and her family to send the computer. Thanks for all of the updates and wonderful words of wisdom and encouragement that you give out through a difficult time for all of you. Continue to stay faithful and continue to let people see the light shining in you. You are making a difference in so many people's lives.
May the Lord continue to bless the whole family and may He allow you guys to be reunited at home together! All of you are in our thoughts and prayers.
Love, The Dirks Family
A Shelter in the Time of Storm
Words and Music- Ira D. Sankey
The Lord's our Rock, in Him we hide, A Shelter in the time of storm;
Secure whatever ill betide, A Shelter in the time of storm.
****Refrain****
O Jesus is a Rock in a weary land, a weary land, a weary land;
O Jesus is a Rock in a weary land, A Shelter in the time of storm.
A Shade by day, Defense by night, A Shelter in the time of storm;
No fears alarm, no foes affright, A Shelter in the time of storm.
*****
The ragging storms may round us beat, A Shelter in the time of storm;
We'll never leave our safe retreat, A Shelter in the time of storm.
*****
O Rock divine, O refuge dear, A Shelter in the time of storm;
Be Thou our Helper ever near, A Shelter in the time of storm.
*****
Dear Dirks Family - I hope you see this - That hymn you posted "A Shelter in the Time of Storm" was the other hymn Kristan wanted to post with the "Welcome to Siberia" entry, along with "Sitting at Jesus' Feet." It is so true.
ReplyDeleteAunt Kim
So by now Jesse may be back on the Portagen formula. We are praying that all goes well this time. It would be wonderful if you and Jesse are able to come home next week! But one way or the other, we pray Jesse continues to grow and get stronger.
ReplyDeleteAll our love, Mom & Dad